Simon Haslam, Anne Hanel, Margaret Callaghan, Gary McGrow, Julie Lennox, FMR Research Ltd
ISBN 978 0 7559 7552 5 (Web only publication)
ISSN 0950 2254
This document is also available in pdf format (540k)
CONTENTS
ACKNOWLEDGEMENTS
EXECUTIVE SUMMARY
Background to the consultation
Method
Main Findings
Analysis of the responses
Overall opinion
Access: My right to accessible NHS care and a waiting time guarantee
Respect: My right to be treated with dignity and respect
Safety: My right to safe and effective care
Communication: My right to clear, accessible and appropriate communication
Information: My right to information about the services I use and the treatment and care options available to me
Participation: My right to be involved in making decisions about my care and the services I use
Privacy: My right to privacy and confidentiality
Independent support and redress: My right to comment about my care and have my concerns addressed
Conclusions
CHAPTER 1: INTRODUCTION
Background to the consultation
Purpose of the consultation
This report
CHAPTER 2: METHOD
Process overview
Written submissions
National events
Focus groups
Supporting local consultation by NHS Boards
Data analysis
Summary
CHAPTER 3: ANALYSIS OF WRITTEN RESPONSES
The respondents
Overview of the written responses to the consultation
Access: My right to accessible NHS care and a waiting time guarantee
Respect: My right to be treated with dignity and respect
Safety: My right to safe and effective care
Communication: My right to clear, accessible and appropriate communication
Information: My right to information about the services I use and the treatment and care options available to me
Participation: My right to be involved in making decisions about my care and the services I use
Privacy: My right to privacy and confidentiality
Independent support and redress: My right to comment about my care and have my concerns addressed
Other possible rights
The right to die
The rights of carers
Right to be fed/adequate nutrition
Over-arching themes
Legislation
Scope of the Patients' Rights Bill
Resource implications
Patients as individuals
Emphasis on responsibilities
Summary
CHAPTER 4: DISCUSSION OF THE NATIONAL EVENTS
Overall support for the rights
Discussion in relation to each of the proposed rights
Access: My right to accessible NHS care and a waiting time guarantee
Respect: My right to be treated with dignity and respect
Safety: My right to safe and effective care
Communication: My right to clear, accessible and appropriate communication
Information: My right to information about the services I use and the treatment and care options available to me
Participation: My right to be involved in making decisions about my care and the services I use
Privacy: My right to privacy and confidentiality
Independent support and redress: My right to comment about my care and have my concerns addressed.
Other points raised during the events
Summary
CHAPTER 5: FOCUS GROUP RESULTS
Discussion in relation to each of the proposed rights
Access: My right to accessible NHS care and a waiting time guarantee
Respect: My right to be treated with dignity and respect
Safety: My right to safe and effective care
Communication: My right to clear, accessible and appropriate communication
Information: My right to information about the services I use and the treatment and care options available to me
Participation: My right to be involved in making decisions about my care and the services I use
Privacy: My right to privacy and confidentiality
Independent support and redress: My right to comment about my care and have my concerns addressed.
Other emergent issues
How to communicate the rights
How to make the rights a reality
Summary
CHAPTER 6: CONCLUSIONS
Overview
Overarching themes
Legal issues
Scope of the rights
Resource issues
Issues to do with patient privacy, confidentiality and capability
Responsibilities
Additional points
Structural review
Waiting times and access to services
End of life
Safe and effective care
Responsibilities of patients
Participating in training, teaching and research
Other points
Final comment
ANNEX 1 Patients' Rights Consultation document
ANNEX 2 National events voting
ANNEX 3 Generic event/focus group topic guide
ANNEX 4 Supporting guidance for NHS Boards
Appendix 1 - Suggested local consultation approaches
Appendix 2 - Generic event/focus group topic guide for NHS Boards
ANNEX 5 Focus groups
List of Tables
Table 3.1: Respondent profile
Table 3.2: Overall opinions with respect to Patients' Rights Bill
Table 3.3: Views on right to accessible NHS care and a waiting time guarantee
Table 3.4: Views on right to be treated with dignity and respect
Table 3.5: Views on right to safe and effective care
Table 3.6: Views on right to clear, accessible and appropriate communication
Table 3.7: Views on right to information about the services I use and the treatment and care options available to me
Table 3.8: Views on right to be involved in making decisions about my care and the services I use
Table 3.9: Views on right to privacy and confidentiality
Table 3.10: Views on right to independent support and redress
Table A2.1: Mean figures from voting at National Events by area and role
The views expressed in this report are those of the researcher and
do not necessarily represent those of the Department or Scottish Ministers.