ISBN 978 0 7559 1930 7
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Contents
EXECUTIVE SUMMARY
1. INTRODUCTION
1.1 BACKGROUND
1.2 METHODOLOGY
1.3 THIS REPORT
2. DEVELOPING THE NATIONAL DELIVERY PLAN
2.1 BACKGROUND TO THE NATIONAL DELIVERY PLAN
2.2 KEY CHALLENGES
2.3 THE WAY FORWARD
3. PRIORITY ACTIONS
3.1 CHILDREN'S CANCER SERVICES
3.2 CYSTIC FIBROSIS
3.3 INHERITED METABOLIC DISEASES
3.4 PAEDIATRIC RHEUMATOLOGY
3.4 GENERAL SURGERY OF CHILDHOOD
4. THE ROLE OF NETWORKS
4.1 SUPPORTING AND DEVELOPING MCNS
4.2 MANAGED SERVICE NETWORKS
4.3 TELEMEDICINE
5. PLANNING AND COMMISSIONING
6. WORKFORCE
7. PERFORMANCE MANAGEMENT
7.1 IMPLEMENTING PERFORMANCE MANAGEMENT
7.2 CHILD HEALTH COLLABORATIVE AND CHILD HEALTH ALLIANCE
8. AGE APPROPRIATE CARE
9. CHILDREN AND YOUNG PEOPLE'S FEEDBACK
10. PARENT AND CARER FEEDBACK
GLOSSARY OF ABBREVIATIONS
Rocket Science UK Ltd
Rocket Science would like to thank all of the children and young people, parents and carers, professional staff and representatives of voluntary organisations who took time to participate in the consultation. These discussions have been both invaluable and stimulating and we would like to record our appreciation for the time and consideration taken to engage with us. We would also like to thank those organisations who took time to disseminate the information and encourage others to take part. Specifically we would offer our thanks to Highland Children's Forum, the Drop-in Centre at the Royal Hospital for Sick Children and Yorkhill Hospital Youth Voices group staff for supporting us and participants to take part.
The views expressed in this report are a summary of the main points of views expressed at the engagement sessions. They do not necessarily represent those of the Scottish Government or Scottish Ministers.