Footnotes
1 There are a number of outputs from the research which should continue to serve as a resource for stakeholders (carers' organisations, local authorities, health agencies, the Scottish Executive, Westminster government, and other interested parties) to utilise beyond the scope of the research project. These include all the data sets (quantitative and qualitative), a 'tool kit' for conducting focus groups with unpaid carers, an economic modelling tool designed to look 10 years ahead and with the functionality to replace the core data sets on which it is based, and to put an economic value on unpaid care, questionnaires and other survey instruments which can be utilised at later dates, and a review of research incorporating comparative international case studies.
2 See Appendix 3: 'Voices of Carers': Report of a National Survey of Unpaid Carers.
3 See Appendix 4: 'Voices of Carers': Report of focus groups and in depth interviews with unpaid carers.
4 The strand of the work was developed in partnership with Experian Business Strategies, a specialist economic research and consultancy organisation.
5 These findings are taken from the national survey of carers, together with key messages from focus groups and in depth individual interviews and are not presented in order of importance. A ranking of which measures unpaid carers consider to have most impact is presented in Appendices 3 and 4.
6 See especially See Appendix 4: 'Voices of Carers': Report of focus groups and in depth interviews with unpaid carers.
7 The research also invited examples of good practice in relation to any aspect of supporting unpaid carers to be submitted. These were collated and re-submitted to the Nuffield Centre for Community Care in Glasgow as a contribution to the national good practice database held there.
8 See particularly ranking of measures thought to impact on improving the situation of unpaid carers in Appendix 3: 'Voices of Carers': Report of National Survey of Unpaid Carers and key findings of Appendix 4: 'Voices of Carers': Report of focus groups and in depth interviews with unpaid carers.
9 ibid.
10 ibid.
11 ibid.
12 See particularly Appendix 4: 'Voices of Carers': Report of focus groups and in depth interviews with unpaid carers.
13 The distribution of the Delphi survey revealed that many agencies were minded to forward the survey to their local social care or health agency, as carers were considered outside the scope of their responsibilities. The research team took care to emphasise that while this may be true where specific statutory requirements are concerned, we were interested in the views of all agencies which impact upon the future of unpaid carers.
14 See Appendix 1: Report of Scenario Planning Event 26 August 2005 - note of proceedings.
15 See particularly Appendix 3: 'Voices of Carers': Report of National Survey of Unpaid Carers and key findings of Appendix 4: 'Voices of Carers': Report of focus groups and in depth interviews with unpaid carers.
16 See Appendix 2: Report of Review of Research and International Case Studies. The five case studies were Germany, US, Australia, Finland, Denmark.
17 See section on review of literature on economic modelling the future of care in Appendix 2.
18 See appendix 2: Report of review of research and international case studies.
19 See appendix 2: Report of review of research and international case studies.
20 See especially focus groups and 1:1 in depth interviews with carers in rural settings.
21 For example, respondents to the national survey of carers highlighted respite and short breaks.
22 The Kerr Report, (Chapter 5: Self-Care, carers, volunteering and the voluntary sector: towards a more collaborative approach), NHS, 2005.
23 See particularly ranking of effects of caring on health and well-being in Appendix 3: 'Voices of Carers': Report of National Survey of Unpaid Carers and key findings of Appendix 4: 'Voices of Carers': Report of focus groups and
in depth interviews with unpaid carers.
24 Appendix 4: 'Voices of Carers': Report of focus groups and in depth interviews with unpaid carers.
25 See Appendix 1.
26 See particularly key findings of Appendix 4: 'Voices of Carers': Report of focus groups and in depth interviews with unpaid carers.
27 See specific issues for carers with mental health issues and carers with learning disability in Appendix 4: 'Voices of Carers': Report of focus groups and in depth interviews with unpaid carers.
28 See particularly Appendix 4: 'Voices of Carers': Report of focus groups and in depth interviews with unpaid carers.
29 ibid.
30 See also Appendix 2: Report of review of research and international case studies.
31 Strategy for Volunteer Development: Review of Literature and Research, Danson, M, 2005.
32 Becker, S., Review of research on young carers, presentation to 'Supporting Young Carers - A Future Through Partnership' conference, Edinburgh, 6th June 2005.
33 There are a number of outputs from the research which should continue to serve as a resource for stakeholders (carers' organisations, local authorities, health agencies, the Scottish Executive, Westminster government, and other interested parties) to utilise beyond the scope of the research project. These include all the data sets (quantitative and qualitative), a 'tool kit' for conducting focus groups with unpaid carers, an economic modelling tool designed to look 10 years ahead and with the functionality to replace the core data sets on which it is based, and to put an economic value on unpaid care, questionnaires and other survey instruments which can be utilised at later dates, and a review of research incorporating comparative international cases studies.
34 OPM acknowledges the help of Care 21 and the Scottish Executive's Social Work Services Policy Division and Carers Branch for their contribution to this section of the report.