Scottish Diabetes Core Dataset

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SCOTTISH DIABETES CORE DATASET

DEMOGRAPHIC DATA

Reference number

Field name

Description

Parameter

Read term

Read code

Term code

Laterality code

Coding comment

Changes from CRAG 2000

Definitions and note

1

PT_NHS

Community Health Index (CHI) number for Scotland

10 digits

Patient CHI number

915B.

00

Read code + CHI number

n/a

Mandatory field. The Community Health Index (CHI) is a population register used for health care purposes. The CHI number uniquely identifies a person on the index.

2

PT_ID

Principal treating hospital patient number

14 characters

Patient hospital number

915D.

00

Read code + hospital number

n/a

The hospital patient identifier is a code, which uniquely identifies a patient on the main index of a hospital (i.e. within the hospital health records system).

3

HOSP_ID

Principal treating hospital identifier

6 characters

Hospital reference number

9R6..

00

Read code + ISD location code

n/a

Each location in Scotland, at which events pertinent to the Scottish Health Service take place, is allocated a location code. Locations include hospitals, health centres, clinics, NHS board offices, private nursing homes, homes for the elderly, children's homes and schools. The code is a five- character code maintained jointly by ISD and GRO (Scotland).

4

PRACID

General practice identifier

6-digit practice code

ISD reference file number (no Read code available)

n/a

Each GP practice (partnerships and single-handed) in Scotland is identified by a unique GP practice code. The practice code is a four-digit code plus a check digit with ranges of codes allocated to each NHS Board

5

GP_CODE

Registered GP identifier (GMC Code)

7 digits (GMC No. format)

General Medical Practitioner

03DC.

00

Read code + GMC Number

n/a

The GMC (General Medical Council) number is the personal identification number issued to each doctor/dentist by the General Medical Council/General Dental Council.

6

GPC_CODE

GMC Code of GP to whom correspondence should be addressed

7 digits (GMC No. format)

GMC Number (no Read Code available)

n/a

See above.

7

SURNAME

Present surname

20 characters

Patient surname

9152.

00

Read code + text

n/a

Mandatory field. The surname of a person represents that part of the name of a person, which indicates the family group of which the person is part. It should be noted that in Western culture this is normally the latter part of the name of a person. However, this is not necessarily true of all cultures. This will, of course, give rise to some problems in the representation of the name. This is resolved by including with the name a preferred name format indicating amongst other things the order of various parts of the name.

8

FNAME1

1st forename

20 characters

Patient forename

9151.

00

Read code + text

n/a

Mandatory field. The first forename of a person represents that part of the name of a person, which after the surname, is the principal identifier of a person.

9

FNAME2

2nd forename

20 characters

No Read code available

n/a

A previous name is any name by which a person was previously known.

10

OLDNAME

Previous surname

20 characters

No Read code available

n/a

This is any surname by which a person was previously known.

11

DOB

Date of birth

dd/mm/yyyy

Patient date of birth

9155.

00

Read code + date

n/a

Mandatory field

12

ADDR1

Address 1

35 characters

Patient address

9153.

00

Read code + address

n/a

NHS standards for unstructured and structured addresses exist and are applicable in England and Scotland. (Refer to Defs Manual for details).

13

ADDR2

Address 2

35 characters

No Read code available

n/a

14

ADDR3

Address 3

35 characters

No Read code available

n/a

15

ADDR4

Address 4

35 characters

No Read code available

n/a

16

PCODE

Postcode

8 characters

Patient postcode

9158.

00

Read code + postcode

n/a

The postcode is a basic unit for identifying geographic locations. A postcode has two component parts: part one is the outcode, and part two is the incode. Refer to Definitions Manual for more details.

17

SEX

Sex

Heading

Gender

1K...

00

Read code heading

n/a

Phenotype at birth.

1 = Male

Male

1K0..

00

Read code

n/a

2 = Female

Female

1K1..

00

Read code

n/a

18

ETHN_GP

Ethnic grouping

heading

Ethnic groups (2001 census)

9S...

00

Read code heading

Updated from 1991 census to 2001

An ethnic group is a group of people having racial, religious, linguistic and/or other cultural traits in common. The ethnic group to which a patient belongs is judged by the patient. The standard 2001 OPCS classification of ethnicity is used here.

0 = White

White Scottish

9S13.

00

Read code

n/a

White Irish

9S11.

00

Read code

n/a

Other white British ethnic group

9S14.

00

Read code

n/a

Other white ethnic group

9S12.

00

Read code

n/a

1 = Black Caribbean

Black Caribbean

9S2..

00

Read code

n/a

2 = Black African

Black African

9S3..

00

Read code

n/a

Other black ethnic group

9SG..

00

Read code

n/a

3 = Indian

Indian

9S6..

00

Read code

n/a

4 = Pakistani

Pakistani

9S7..

00

Read code

n/a

5 = Bangladeshi

Bangladeshi

9S8..

00

Read code

n/a

6 = Chinese

Chinese

9S9..

00

Read code

n/a

Other Asian ethnic group

9SH..

00

Read code

n/a

30 = Other

Other ethnic group

9SJ..

00

Read code

n/a

Other ethnic, mixed origin

9SB..

00

Read code

n/a

Ethnic group not recorded

9SE..

00

Read code

n/a

19

STATUS

Current practice registration status

heading

Patient registration status

912..

00

Read code heading

n/a

Required to record accurate prevalence data.

1 = On practice list

Patient registered by HB

912C.

00

Read code

n/a

2 = Not on practice list

Patient not registered

9121.

00

Read code

n/a

20

DTDIAG

Date of diagnosis

dd/mm/yyyy

Diabetes mellitus

C10..

00

Read code + date

n/a

Day and month are not obligatory and where missing the format 01/01/2003 is recommended. Date of diagnosis does not apply to states of impaired glucose tolerance or impaired fasting glucose.

21

FASTING

Fasting venous plasma glucose at diagnosis

(nn.n) mmol/l

Plasma fasting glucose level

44g1.

00

Read code + value + date

n/a

To ensure that a patient entered on the database has the appropriate diagnosis of diabetes mellitus, some measurement of blood glucose at diagnosis is required. Venous plasma sample must be used for this purpose. It is not essential that all 3 items are included, but at least one must be recorded. This should be interpreted according to the prevailing agreed UK classification of diabetes. In some cases, a random or fasting blood glucose will be sufficient; in others, the OGTT will be required.

22

2HRGLU

2-hour venous plasma glucose OGTT at diagnosis

(nn.n) mmol/l

120 minute plasma glucose level

44g6.

00

Read code + value + date

n/a

Venous plasma glucose value two hours post 75g oral glucose.

23

RANDGLU

Random venous plasma glucose at diagnosis

(nn.n) mmol/l

Plasma random glucose level

44g0.

00

Read code + value + date

n/a

24

TYPE_DM

Type of diabetes

1 = Type 1 Diabetes Mellitus

Type 1 Diabetes Mellitus

C108.

12

Read code + Term code

n/a

'Preferred term' codes for types 1 & 2 diabetes should be available in the future through the new terminology SNOMED-CT. Secondary, other and unknown categories have not been included in the core dataset. 'Secondary diabetes' cannot currently be coded. It was considered that few or no patients should have 'other' or 'unknown' type of diabetes.

2 = Type 2 Diabetes Mellitus

Type 2 Diabetes Mellitus

C109.

12

Read code + Term code

n/a

3 = Impaired glucose tolerance

Impaired glucose tolerance

R10E.

00

Read code

n/a

Note this does not constitute a diagnosis of diabetes mellitus.

4 = Impaired fasting glucose

Impaired fasting glycaemia

R10DO

00

Read code

5 = Gestational

Gestational Diabetes Mellitus

L1809

00

Read code

n/a

6=Maturity onset diabetes of youth (MODY)

Maturity onset diabetes of youth

C10C.

11

Read code + Term code

n/a

25

HOSPCARE

Attendance at hospital diabetes clinic

Attended hospital diabetes clinic

Seen in diabetic clinic

9N1Q.

00

Read code + date

Binary response in CRAG 'attends/does not attend' - see notes

Binary response in CRAG 'attends/does not attend' could not be Read coded - considered positive response with date is appropriate for core dataset.

26

CARETYPE

Arrangement for formal diabetes care

heading

Diabetic monitoring

66A..

00

Read code heading

4 = Unknown in CRAG dataset - considered parameter should be known.

These data items should be recorded prospectively as intentions.

1 = Primary care (GP) only

Diabetes: practice programme

66AP.

00

Read code

n/a

2 = Hospital diabetic clinic only

Diabetes care by hospital only

66AU.

00

Read code

n/a

3 = Shared between hospital diabetic clinic and GP

Diabetes: shared care program

66AQ.

00

Read code

n/a

27

CLINIC

Principal treating hospital diabetes clinic ID

6 characters

Attending diabetes clinic

9NM0.

00

Read code + clinic ID

n/a

28

DOD

Date of death

dd/mm/yyyy

Death

22J..

12

Read code + Term code + date

n/a

29

DEATHGRO

Cause of death

ICD 10 code

Cause of death

94B..

00

Read code + ICD10 code

n/a

This field would be appropriately completed with ICD10 code by data linkage. From this, death due to coronary heart disease (a St Vincent target) could be ascertained.

Page updated: Friday, June 24, 2005